Nine years ago, when the English couple gave birth to a fairy-like daughter at home, they were overjoyed. In this moment of happiness, the parents of this pink angel-like girl were unaware of how much time would come to torment their flower-like daughter.
Chris Brannigan of the British Army and his wife were delighted to find the girl and suggested her name. The entity was just like normal children. In all that time, year after year, the entity was just like normal children.
Daughters are closer to the father anyway. For Chris too, the entity was the apple of his eye. When the entity was seven years old, he started having severe seizures. She would suddenly become restless and restless. Chris and his wife were deeply disturbed by this condition and when they showed the body to the doctor, the doctors, after a thorough examination, revealed to the couple their daughter was suffering from a rare genetic disease. Cornelia de Long Syndrome
This disease slows down the growth of different parts of the baby's body, which affects the growth of the brain as well as the growth of the bones of the body. The disease is congenital, but the symptoms of the disease began to appear in the body at the age of seven.
The disease affects one in 30,000 children and there is little research on it. Children with the disease often die before they are diagnosed with the disease.
When the doctors told Chris about the disease, they also told him that due to insufficient research, the cure for the disease has not been discovered yet. And a huge amount of money is needed for its research, after which a form of treatment for the entity will emerge.
Forced by his daughter's love, the father persuaded experts to launch an investigation to find out more about the entity and other children with the disease. Last year, he launched a campaign called Hope for Entity in which he walked barefoot in different parts of the UK and collected money from various people to treat the entity by walking 500 miles. The money he raised was donated to the Jackson Laboratory in Maine, USA, where the causes and treatment of this rare disease are being investigated.
But according to doctors, the severity of the disease is increasing over time and may worsen as people reach puberty, with a total of 25 2.5 million needed for research, while Chris has only nine so far. Only managed to raise a million pounds.
Given the fragility of the situation, Major Chris once again decided to start asking for money for the barefoot entity. This time their destination is 1,200 miles to Florida. Major Chris, once again carrying a 25kg bag on his bare feet, is once again on the Hope for Entity campaign.
Chris is aware of the difficulties along the way, but he is willing to put up with everything for his daughter's love and comfort, and is hopeful and hopeful that he will be able to raise a whopping لاکھ 2.5 million. Raise funds for research to save the lives of the entity and other such children.
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